Raising awareness and supporting rare diseases throughout all communities
Latest News
Latest News
Voices from rare disease groups across NI
10 November 2020
PLEASE have your experiences counted!
Evaluating the impact of COVID-19 on rare disease support groups
10 July 2020
Hear from rare disease carers
Voices from rare disease carers across NI
11 July 2020
During the 2020 COVID-19 pandemic
Shielding with a rare disease
3 July 2020
Latest News
Voices from rare disease groups across NI
25 May 2020
A Mitochondrial toolbox!
Delighted our 'Mitochondrial toolbox' review has been published by Frontiers in Genetics
7 May 2020
Latest Events
Latest Event
Learning more about advanced genetic testing - a prenatal perspective
24/07/2020 @ 1:00PM - 2:00PM
Remote seminar - please join via Microsoft Teams
Latest Event
Rare Disease Day 2020
28/02/2020 @ 9:15AM - 4:00PM
Riddel Hall: https://www.qub.ac.uk/sites/campus-food-drink/RiddelHall/
Latest Event
Rare Disease Research above and beyond
30/01/2020 @ 1:00PM - 2:00PM
Level 2 Seminar Room, Institute of Clinical Sciences, Block B, Royal Victoria Hospital
Latest Event
RARDTAC - carer focus
16/01/2020 @ 12:15PM - 2:30PM
Bangor Carnegie Library
Hamilton Road
Bangor, Co. Down
BT20 4LH
Latest Event
Rare diseases and specialised commissioning in England - genomics, research and access to medicine
9/01/2020 @ 8:30AM - 5:00PM
The Caledonian Club, 9 Halkin Street, London SW1X 7DR
Latest Event
RARDTAC - living with a rare disease
9/12/2019 @ 10:00AM - 2:00PM
Ards Blair Mayne Wellbeing and Leisure Complex
1 Dairy Hall Lane,
Newtownards, BT23 4DB